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A doctor archenera specializing in Rare Diseases and Unit Head of Medical Genetics, Hospital Virgen de la Arrixaca of Murcia, Encarna Guillén, received by HRH the Princess of Asturias Award of Special Autonomy the Spanish Federation for Rare Diseases in the Senate of Spain.

To Dr. Guillen, plus parents and siblings, also accompanied him Archena Mayor, Manuel Marcos Sánchez Cervantes.

According to sources within the Senate, HRH the Princess of Asturias presided over the ceremony yesterday morning in the Senate on the occasion of the celebration of World Day of rare diseases.

The event also involved the President of the Senate, Javier Rojo, the Minister of Health, Social Policy and Equality, Leire Pajin, the Minister for Science and Innovation, Cristina Garmendia and the President of the Spanish Federation for Rare Diseases (ERDF), Isabel Calvo.

Throughout the event, HRH The Princess of Asturias presented the other prizes ERDF to the following people and institutions:

- Special Prize Day: Manuel Posada de la Paz, Director of the Research Institute for Rare Diseases.

- Ambassador Award for Rare Diseases: Rosa Sanchez de la Vega Garcia, vice president of EURORDIS and member of the Board of ERDF.

- Award solidarity awareness (shared): Andrés Iniesta, football player of FC Barcelona and Pharmacists Without Borders in Spain.

- Prize for solidarity with those affected: State Reference Center of Attention to People with Rare Diseases (BELIEVE) under the IMSERSO.

Purification Causapié takes the prize, Director General of IMSERSO

- Prize for journalism, Spanish Radio and Television.

Benigno Moreno takes the prize Castaño, Director of Radio Nacional of Spain.

- Social Responsibility Award: The Senate of Spain.

Takes the prize Javier Rojo Garcia, President of the Senate.

- Award for a lifetime for Rare Diseases: Rosario Fernández, Delegate of the Spanish Association of porphyria.

Special awards autonomic

• Madrid: Engracia Hidalgo Tena, Minister of Family and Social Affairs of the Autonomous Community of Madrid.

Takes the prize Anchuela Carmen Pérez, Director General of Social Services of the Autonomous Community of Madrid.

• Extremadura, Guillermo Fernández Vara, President of the Junta de Extremadura.

Alejo Salas takes the prize, Coordinator General of the Presidency and Relations with the Assembly of the Junta de Extremadura.

• Valencia: José María Millán Salvador, Geneticist and Director of the Cyber Biobank.

• Catalonia. Josep Torrent-Farnell, Director of the Foundation Dr. Robert.

• Andalusia Real and Official College of Pharmacists of Seville.

Takes the prize its President, Manuel Pérez Fernández.

Source: Ayuntamiento de Archena